BCDI’s Dr. Jonathan Roberts played a key role in the creation, validation and development of GOAL-Hem. The study’s goal is to enhance patient-centered hemophilia treatment center care, improve clinical studies and serve as a tool to gather real-world evidence.
Dr. Roberts coordinated and facilitated the in-person patient focus groups for GOAL-Hem at BCDI, while BCDI Program Director Sarah Gonzales assisted in the study’s successful coordination, data collection and analysis.
Check out the GOAL-Hem study for yourself, published by Wiley Online Library: https://onlinelibrary.wiley.com/doi/epdf/10.1111/hae.14608