Research Team

BCDI is committed to providing the most cutting edge treatment opportunities and for bleeding disorder patients. To achieve this commitment, BCDI participates in a variety of clinical trials and data collection studies for bleeding disorder patients.

What is a clinical trial?
Click here to download more information about clinical trials.

What is informed consent?
Click here to download more information about informed consent.


Clinical Trails

The following clinical trials are currently available at BCDI. Click on the links below to learn more information.

Antithrombin deficiency

Hemophilia A

Adult Patients

Hemophilia A & B

Pediatric & Adult

  • JSBPUS – Joint Status and Bleeding Phenotype Characterization in Severe and non-severe Hemophilia A & B. Comparison of bleeding phenotype, Bleeding assessment, Beighton score & Joint ultrasound over a 3 year period.

von Willebrand Disease

Immune Thrombocytopenia Purpura (ITP)

Adult Patients

Pediatric Patients


Data Collection Studies

Data Collection Studies gather clinical data on bleeding disorder patients and the data helps physicians develop best practices for the treatment of bleeding disorder patients.

The following Data Collection Studies are currently being done at BCDI. Click the links below to learn more information.

Von Willebrand

  • ATHN 9 – VWD Natural History Study: Safety and effectiveness of the treatments used for people with von Willebrand Disease.
  • VWD ABC- The von Willebrand disease and Bleeding correlation study.

General Bleeding/Clotting Disorders

  • ATHN 10 – Rare Coagulation Disorders Project – Genetic testing for specific rare bleeding disorder patient who carry a rare diagnosis
  • ATHNDATA SET: ATHN’s safe and secure national patient health data resource – the ATHNdataset – has grown to include over 23,646 patients who have chosen to “opt-in” by signing a patient authorization at their Hemophilia Treatment Center (HTC).
  • CDC REGISTRY- CDC Public Health Surveillance for bleeding Disorders – Registry for bleeding disorders surveillance.
  • SCNIR: Severe Chronic neutropenia International Registry an organization dedicated to improving understanding and treatment for diseases causing severe chronic neutropenia.