Patient Education
FOR PROVIDERS
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The mission of The Bleeding & Clotting Disorders Institute is to provide integrated, family-oriented care, treatment and education for individuals with bleeding, blood clotting and other blood disorders.
As the only federally funded Hemophilia Treatment Center of Excellence in the state of Illinois outside of Chicago, we strive to deliver exceptional care for each person we serve.
When you visit BCDI, we are committed to walking alongside you through any stage of your diagnosis. Supporting each patient and their family physically, mentally and emotionally is top priority for our staff.
Integrated Medical Care
Our board-certified team of providers offers personalized, multidisciplinary medical care to promote the highest quality of life possible for all our patients. Integrated care treats the whole person and the family – physically, mentally and emotionally. Our staff delivers medical and psychosocial care, offering knowledge and support through all aspects of bleeding disorders.
Integrated care is total care because various factors play a role in treatment, including:
- Physical factors
- Emotional factors
- Psychological factors
- Educational factors
- Financial factors
- Vocational factors
The concept of integrated care has developed dramatically over the past 30 years. Providers and families alike report an improved quality of life for people with a bleeding disorder when part of an integrated comprehensive care model. This well-rounded approach to care has increased our knowledge about coping with a disorder, while the treatment center care network has improved patients’ overall health.
The Medical and Scientific Advisory Council
The Medical and Scientific Advisory Council (MASAC) was created in 1954 to issue recommendations and advisories on treatment, research and other general health concerns for the bleeding disorders community. Over the years, MASAC has issued more than 400 communications covering a wide range of medical issues, from prevention and treatment to infectious disease complications to women with bleeding disorders. Each year, MASAC establishes standard treatment guidelines. These are often referred to by international experts, medical schools, pharmacists, emergency room personnel, insurance companies and many others.
MASAC is composed of physicians, (including Dr. Jonathan Roberts), scientists and other medical professionals with a wide range of expertise on bleeding disorders, blood safety and infectious disease. It also comprises the chairs of NHF’s nursing, social work, and physical therapy working groups and consumers. MASAC usually meets twice each year to issue recommendations, which are then sent to the NHF Board of Directors for approval.